CT Lyme Riders, Inc.
News/Articles
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There are many articles, movies/documentaries showing the horrors of living with Lyme Disease, doctor's speaking out trying to help Lyme Disease sufferer's, reports showing Lyme Disease is transferred by insects other  than just ticks and more.  Check out the articles and links on this page and learn more about the Lyme Disease fight and how it effects thousands and thousands of people.
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click on picture above for full article
 From AIDS to Lyme: Will We Let History Repeat Itself?
Tuesday, 14 January 2014 09:59 
Some argue that the inadequate early government response to AIDS epidemic-including diagnostic, treatment, funding and research failures-is being repeated with Lyme disease, affecting hundreds of thousands.



 

Are My Anxiety and Depression Due to Lyme Disease?

Why Can’t I Get Better?
Solving the mystery of lyme and chronic disease
by Richard Horowitz, MD
Click on the picture link to the left to read the article.



 
Lyme message to light up Times Square for month of May
LDA to run a video ad on the Jumbotron for nine weeks. How do you fight a disease that the Centers for Disease Control & Prevention reports has surpassed HIV in case numbers for 2009, that a National Institutes of Health-funded study concluded its impact on physical health was at least equal to the disability of patients with congestive heart failure?
Chronic Lyme disease, are you next?
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If you missed the Dr. Phil showing on Lyme disease, you can watch it here


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FDA to Rule on Testing New Drug for Chronic Lyme
4-2-2012
http://www.newstimes.com/business/press-releases/article/FDA-to-Rule-on-Testing-New-Drug-for-
Chronic-Lyme-3452490.php#ixzz1uKoMeadF
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Lyme disease bacteria take cover in lymph nodes, study finds. 
The bacteria that cause Lyme disease, one of the most important emerging diseases in the United States, appear to hide out in the lymph nodes, triggering a significant immune response, but one that is not strong enough to rout the infection, report researchers at the University of California, Davis.
Results from this groundbreaking study involving mice may explain why some people experience repeated infections of Lyme disease.
The study appears online in the journal Public Library of Science Pathogens at: http://tinyurl.com/3vs8pm9
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According to findings from a team at New York’s Cary Institute of Ecosystem Studies led by Dr. Richard Ostfeld, changes in acorns and mouse populations will lead to a surge in Lyme disease this spring.Fewer acorns equal fewer white-footed mice, this results in “ticked off ticks” so to speak. The ticks will increasingly look to humans for their blood meals. According to the study, this will cause a spike in Lyme disease risks.
 Dr. Sam Shor – Lyme Disease Risks May Be Higher This Year
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Documents provided by Karin Harriss show that Army doctors initially thought he had encephalopathy. Then came a diagnosis of Parkinson’s disease along with a combination of medications, including the neurotransmitter dopamine, that Karin Harriss believes did her husband far more harm than good. The Parkinson’s diagnosis was followed by a positive test for Lyme disease, a tick-borne illness that can attack the central nervous system if left untreated.  After the Lyme diagnosis, Chris Harriss received powerful antibiotics for a month. His wife said the antibiotics seemed to be making a difference, but the Army, following federal Centers for Disease Control and Prevention guidelines, stopped the medication.
 Soldier’s spirit is fighting fit as he recovers from mysterious illness
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The letters from the doctors all start the same way: It was a pleasure to meet this man, Bruce Shilton, a strong upstanding member of the community, criminal lawyer for 24 years, judge on the Ontario Court of Justice for six. Whatever Mr. Shilton’s health problems are, the doctors say, they will get to the bottom of it.  And they never do.  Mr. Shilton is no longer working as a criminal lawyer, no longer sitting on the bench. He is sitting, instead, at his kitchen table in Oak Ridges, rifling through a stack of letters from medical specialists, letters that offered him hope but led to dead ends.
 Judge wants Lyme Disease treated like West Nile by health system ________________________________________
Yale Study
December,2009
The range of Lyme disease is spreading in North America and it appears that birds play a significant role by transporting the Lyme disease bacterium over long distances, a new study by the Yale School of Public Health has found.   Click on the link below to read the entire article.

Birds Play an Important Role in the Spread of Lyme Disease, Yale Study Finds
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July 26, 2009
CT Law Approved To Protect Lyme Doctors

There's been a surge of encouraging momentum and positive developments building recently for patients suffering from chronic Lyme disease, and for the doctors who treat them. Signaling what many hope is a harbinger of commonsense legislative action that will eventually sweep across the country, Connecticut Governor M. Jodi Rell last month signed into law a bill that allows physicians to prescribe long-term antibiotics in the treatment of persistent Lyme disease.

House Bill 6200 unanimously passed through both sides of the Connecticut General Assembly. The bill allows doctors to treat for Lyme disease outside standard guidelines, which were established by the Infectious Diseases Society of America and recommend against treating Lyme disease more than a few weeks.

The IDSA guidelines, however, have come under intense fire. In May, the Connecticut Attorney General found that the panel responsible for writing the Lyme guidelines had conflicts of interest, engaged in exclusionary conduct, and suppressed scientific evidence. The Attorney General's investigation resulted in a settlement forcing the IDSA to form a new panel to review and revise the guidelines. That process is ongoing, however, and doctors across the country who currently treat long term for chronic Lyme still do so at great risk to their medical licenses.

In that light, the legislation recently approved and signed into law by Gov. Rell in Connecticut comes as welcome news. The bill allows doctors to prescribe long-term antibiotics as a way to treat patients with Lyme disease, if a licensed physician has documented the patient's clinical diagnosis of the disease and treatment. The bill also prevents the state health department from taking disciplinary action against any physician who prescribes long-term antibiotics to Lyme patients.

"This is positive step forward in bringing the possibility for renewed health to chronic Lyme patients who have suffered terribly under the flawed guidelines issued by the IDSA," said Dr. Joseph Jemsek, a infectious disease specialist who two years ago was disciplined by the North Carolina Medical Board, for treating Lyme patients outside the IDSA guidelines. The medical board's ruling was immediately stayed, and Dr. Jemsek continues to successfully treat Lyme patients from across the country and the globe, from his clinic in Fort Mill, SC.

"It is my sincere hope that doctors everywhere will one day be able to enjoy the same protections now afforded physicians in Connecticut," Dr. Jemsek said, "to provide chronic Lyme patients with the best possible care." 
Gov. Rell shared those sentiments.

"Doctors in Connecticut - the absolute epicenter of Lyme disease - can continue to do what is best for their patients suffering from this complex illness," Gov. Rell said. "I think most people know someone who has been infected. The bill also recognizes that Lyme disease patients must have the freedom to choose which remedy or regimen best meets their needs.

"Doctors will have the right to use treatment guidelines based on their clinical experience and best medical judgment," she said. "This bill does not, however, shield any physician who provides substandard care."

The newly approved legislation is already drawing high praise from Lyme advocates and patients' rights groups across the nation.

"Justice has been served," Pat Smith, president of the national Lyme Disease Association, told Connecticut's Wilton Villager newspaper. "Human health has finally triumphed over vested interest in the Lyme capital of the world. Lyme patients and treating physicians in Connecticut can breathe a collective sigh of relief. For years, they have not only been battling the disease, but also battling the politics which have prevented patients from getting treatment and physicians from treating. Gov. Rell and the Legislature have come down on the side of the people."

 

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